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Preemie Matters – November 2013

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In this issue of Preemie Matters: ACOG & SMFM Redefine 'Term Pregnancy' • EverThrive Illinois • U.S. Preterm Birth Rate Drops to 15-Year Low, But Challenges Remain • Insights on Pros & Cons of Private NICU Rooms

ACOG & SMFM Redefine 'Term Pregnancy'

In a joint Committee Opinion, the American College of Obstetricians and Gynecologists (ACOG) and the Society for Maternal-Fetal Medicine (SMFM) have redefined 'term pregnancy' and the parameters of preterm birth. The new Committee Opinion replaces 'term' with a series of more specific labels: 'early term,' 'full term,' 'late term,' and 'postterm.'  The change of definition is intended to prevent early elective deliveries, support high-quality prenatal care, and improve data collection, reporting, and clinical research. Learn more from ACOG.

EverThrive Illinois

EverThrive Illinois, formerly the Illinois Maternal and Child Health Coalition (IMCHC), works to improve the health of women, children, and families through community engagement, partnerships, policy analysis, education, and advocacy. EverThrive works with 90+ members in maternal and child health, through various programs including the Illinois Premature Infant Health Network (IPIHN), which brings together physicians, hospitals and community and health organizations to increase quality health care access for premature infants and their families in Illinois. IPIHN recently hosted a legislative dinner on November 6th in partnership with the Illinois Prematurity Caucus, attended by 16 legislators and 35 guests.

U.S. Preterm Birth Rate Drops to 15-Year Low, But Challenges Remain

March of Dimes has released its annual Premature Birth Report Card with the most recent data on prematurity in the United States. The 2012 the U.S. preterm birth rate dropped for the sixth consecutive year to 11.5 percent. This represents a 15-year low. And six states - Alaska, California, Maine, New Hampshire, Oregon, and Vermont - earned an "A," as their preterm birth rates met the 9.6 percent goal. Nineteen states earned a "B," 17 states and the District of Columbia received a "C," five states got a "D," and only three states and Puerto Rico received an "F" on the report card. The nation as a whole again earned a "C." Among the ongoing challenges: The gap between blacks and whites has been slowly narrowing, but the preterm birth rate among non-Hispanic blacks is still more than 1.5 times the rate of non-Hispanic whites.

Insights on Pros & Cons of Private NICU Rooms

In the NICU, maybe not all silence is golden? A study published in The Journal of Pediatrics provides new insight on the pros and cons of private neonatal ICU (NICU) rooms. "Current practice tells us that we should minimize the amount of stimulation to the baby, so you would think that babies in private rooms would do better - but we found the contrary," said the study's first author, Bobbi Pineda, PhD, of Washington University. The observational study used comprehensive neurobehavioral testing and brain imaging with MRI. At discharge, preterm infants in NICU private rooms tended to show abnormalities in the structure of the brain's language area compared to those cared for in open wards. And at age two, those who had been hospitalized in private rooms showed poorer language skills. Even controlling for multiple contributing factors, the association persisted, raising questions about sensory exposure and suggesting the need for more research on optimal NICU environments.

Sources:

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB’s disclaimer is available on our website.

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Preemie Matters – October 2013

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In this issue of Preemie Matters: New Members • Senate Passes PREEMIE Reauthorization Act • Navigating the Journey • Trauma Therapy for Preemie Moms • Centering Healthcare Institue • Transitioning Home From the NICU

New Members

Join us in welcoming the Coalition's newest members:

Learn more about National Premature Infant Health Coalition membership and complete the online application on our website.

U.S. Senate Passes PREEMIE Reauthorization Act

The U.S. Senate passed S. 252, the PREEMIE Reauthorization Act, on September 25. This bipartisan legislation - co-sponsored by Senators Lamar Alexander (R-TN) and Michael Bennet (D-CO) - reauthorizes federal research, education, and intervention activities begun by the original PREEMIE Act, which brought the first-ever national focus to prematurity prevention. The bill now goes to the U.S. House of Representatives.

Navigating the Journey Through Childhood

November 17 in Fairfax, VA, Preemies Today will host a parent and provider conference, "Navigating the Journey Through Childhood," aimed at educating about maternal and child health needs and raising awareness of prematurity. This World Prematurity Day event at the Inova Fair Oaks Physicians Conference Center will include sessions on developmental delays, sensory processing disorders, post-preemie pregnancy, postpartum post-traumatic stress, nutrition, Medicaid waivers, and speech and language tips, among others. Register online at the Preemies Today website.

Trauma Therapy Eases Symptoms for Preemie Moms

A new study published in the journal Pediatrics finds that a short, cost-effective therapy developed to treat military trauma survivors can help ease the emotional distress of preemie moms. The intervention includes six sessions combining elements of the COPE (Creating Opportunities for Parent Empowerment) NICU program with trauma-focused cognitive behavioral therapy techniques. Mothers in this study who received the intervention had a significant reduction of trauma and depression symptoms, and those who initially reported the most stress showed the most benefit. Finding effective, accessible treatment for this population is key: Up to 40% of mothers of preterm infants experience symptoms of post-traumatic stress disorder (PTSD), which can have long-term consequences for both mother and child.

Centering Healthcare Institute

Centering Healthcare Institute's mission is to improve maternal-child health by transforming care through Centering groups -- a model of group health care. In this model, health assessment, education, and support are provided to group members by a care provider, changing the way women experience their care. The model, piloted by nurse-midwife Sharon Schindler Rising in the the early 1990s, led to the beginning of professional training workshops in 1998. Its redesign of healthcare delivery helps to promote safety, effectiveness, culturally-appropriate patient-centered care, and more equitable care, among other benefits. Centering Healthcare Institute's Fourth National Conference takes place October 26-29 in Washington, DC, bringing together clinicians, researchers, policy makers, administrators, and students to discuss ideas for transforming healthcare delivery.

Premature & High-Risk Infants: Transitioning Home from the NICU

Register online now for Premature and High-Risk Infants: Transitioning Home from the NICU, scheduled for November 1 in Denver, CO. Sponsored by Special Kids-Special Care of Denver, the conference provides a forum for healthcare professionals to share their expertise in the care of premature and high-risk infants and their families as these babies transition home from the hospital. The goal is to optimize health and developmental outcomes, and to support families by sharing best practices, clinical guidelines, and current research with the healthcare professionals and agency staff who care for them.

Sources:

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB’s disclaimer is available on our website.

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National Perinatal Association on RSV

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Respiratory Syncytial Virus (RSV) is the leading cause of hospitalization in all children less than 12 months of age in the United States and is a common illness affecting high-risk individuals, especially premature babies. RSV is dangerous for premature babies because they often lack fully-developed airways. Infants born prematurely do not have the immunity to help fight off viruses because they were born early.

The National Perinatal Association

 

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Preemie Matters – September 2013

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In this issue of Preemie Matters: New Member • August Webinar Recap • Neonatal Nurses Day • Papas of Preemies • Home Visiting Programs for Preemies • NPA Annual Conference

New Member

Join us in welcoming the Coalition's newest member: Academy of Neonatal Nursing. Learn more about National Premature Infant Health Coalition membership and complete the online application on our website.

August Webinar Recap

Thanks to all who joined our August webinar on an important new resource for the field, the Multidisciplinary Guidelines for the Care of Late Preterm Infants, with presenter Raylene Phillips, MD, IBCLC, FAAP. And special thanks to participants who responded to our post-webinar survey. Among the results: 73% gave the webinar an overall rating of "excellent" and 94% say they would take part in a future NPIHC webinar. Participants came from hospitals/healthcare (40%), nonprofit/government (43%), and industry/corporations (16%). Missed the webinar or would like to share it with a colleague? Find the archived slides and audio on our website.

September 15 is Neonatal Nurses Day

National Neonatal Nurses Day - Sunday, September 15th - was established in 2000 by the National Association of Neonatal Nurses (NANN) as an opportunity for the neonatal community to honor nurse colleagues and show pride in the profession of neonatal nursing. This year NANN is encouraging all neonatal nurses and their units to embrace the theme "Love What You Do," sharing ideas for marking the occasion. Because we at NPIHC love what neonatal nurses do, we invite both parents and professionals to join us on September 15th on the NPIHC Facebook page, where we will honor and thank neonatal nurses across the country. With a post to our Facebook wall or a comment on our messages, please tell us about a neonatal nurse who has made a difference for YOU, sharing your stories and photos. .

Papas of Preemies

Joel Brens is on a mission to give a voice to the father's perspective of prematurity and the NICU. Following the preterm birth of his son Jayden in 2010, Brens founded Papas of Preemies as a support community run by parents, for parents. Through the Papas of Preemies website, blog, and Facebook page,  a growing lineup of contributor dads share personal insights, experiences, information, and resources. In October, Brens will be one of four Preemie Parent Alliance members speaking about his NICU experience for an audience of professionals at the National Association of Neonatal Nurses (NANN) Annual Educational Conference in Nashville.

Home Visiting Programs Effective for Preemies & Their Parents

A research review published in Pediatrics finds that home visits by nurses or other trained health professionals can improve the development of preterm infants and effectively support parents and the home environment. The first of its kind in 20 years, this review looked at 17 studies including a total of 2,983 babies, measuring outcomes in five categories. Currently 400 home visiting programs of this kind serve at least 500,000 U.S. families, largely funded by state and local governments. The Patient Protection and Affordable Care Act (also known as Obamacare) designates funding for home visiting programs aimed at improving outcomes for at-risk preemies and their mothers, which may expand their reach. This review's research team calls for additional studies to investigate how home visiting programs can best meet the needs of special populations, including low-income and late-preterm preemies and their families.

NPA's 34th Annual Conference

Registration is open for the National Perinatal Association's 34th Annual Conference, set for November 7-9 in Salt Lake City. With the theme "Families at the Center: New Dimensions in Perinatal Care," the event brings together healthcare professionals and parents - including representatives from NPIHC member organizations -  for a unique learning and networking opportunity. Sessions in this year's lineup cover topics including psychological services in the NICU, the impact of reproductive technologies, NICU environment of care, breast milk for preemies, prematurity's impact on the education system, preemie nutrition and bone density, music for parent and infant stress reduction, and more. Find complete details at NPA's conference brochure and registration flyer.

Sources:

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB’s disclaimer is available on our website.

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Preemie Matters – August 2013

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In this issue of Preemie Matters Breastfeeding: The Importance of Preparing Mothers of Preemies Prior to Discharge • Multidisciplinary Guidelines for the Care of Late Preterm Infants • Tiny Miracles Foundation • Preemie Parent Alliance Summit:October 4-6 in Nashville • Internship with NPIHC

Breastfeeding: The Importance of Preparing Mothers of Preemies Prior to Discharge

Our newest post on the NPIHC site comes from Maureen Doolan Boyle, Mothers of Supertwins (MOST), spotlighting the importance of breast milk for preemie health and how we can support moms of preterm babies. Breastfeeding: The Importance of Preparing Mothers of Preemies Prior to Discharge shares both personal and clinical perspectives, as well as links to helpful resources.

Multidisciplinary Guidelines for the Care of Late Preterm Infants

Our August 8 webinar spotlighted the "Multidisciplinary Guidelines for the Care of Late Preterm Infants," an evidence-based approach to providing safe and supportive care for this vulnerable group. Presenter Raylene Phillips, MD, IBCLC, FAAP, reviewed this new resource and described how its use will lead to improved outcomes for late preterm infants by providing guidance, education, and support for families and the healthcare providers who care for them. Make sure to share these slides and audio, now accessible online as a resource for parents and other advocates, professionals in the field of infant health, and physicians and clinicians providing care to premature infants and their families.

Tiny Miracles Foundation

The Tiny Miracles Foundation is dedicated to helping families of premature infants in the Fairfield County, Connecticut area. This parent-founded organization provides support, information, services, and supplies to families during and immediately after their hospital stay, addressing the myriad family needs that extend beyond the medical care of fragile babies. Their programs include Family Resource Rooms, NICU parent mentors, "Blankets for Preemies," welcome and homecare supplies, and financial assistance. Beyond the NICU, they offer parent mentoring, a resource directory, bereavement support, and bilingual support services. They also host web-based resources and an online community with discussion groups and a weekly chat. On September 29th, the Tiny Miracles Foundation will host their Wild Family Event at the Beardsley Zoo in Bridgeport.

Preemie Parent Alliance Summit: October 4-6 in Nashville

Registration is open for the annual Preemie Parent Alliance Summit, the only weekend-long event of its kind bringing preemie parent leaders together to network, collaborate, and share best practices - toward the goal of supporting families who have been affected by preterm birth. Set for October 4-6 in Nashville, PPA's summit also welcomes clinicians and other professionals from the prematurity field, and will feature a lineup of speakers including PTSD expert and trauma survivor Michele Rosenthal, organizational development consultant Vicki Clark, and media training experts Michele Rosenthal, Julie Howard, and Lori Aston. A discounted hotel room block is available until September 13th.

Internship with NPIHC

Do you know an outstanding student in the Washington, DC area? NPIHC is seeking an intern to support the program in the National Healthy Mothers, Healthy Babies Coalition's Alexandria, VA office. The position will report to NPIHC's program manager. Interested candidates should email their resume and cover letter to agoodman@hmhb.org.

Sources:

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB’s disclaimer is available on our website.

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Webinar: Multidisciplinary Guidelines for the Care of Late Preterm Infants

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Late preterm infants are often treated as "slightly small, almost term babies" and yet babies born at 34 0/7 - 36 6/7 weeks gestation have significantly higher morbidity and mortality rates due to their significant, if not always obvious, immaturity. The "Multidisciplinary Guidelines for the Care of Late Preterm Infants" is an evidence-based approach to providing safe and supportive care for this vulnerable group. Presenter Raylene Phillips, MD, IBCLC, FAAP, reviewed this new resource and described how its use will lead to improved outcomes for late preterm infants by providing guidance, education, and support for families and the healthcare providers who care for them.

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Preemie Matters – July 2013

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In this issue of Preemie Matters: August 8th Webinar: Multidisciplinary Guidelines for the Care of Late Preterm Infants • Video Educates About Risks of Elective Preterm Delivery • Mothers' Milk Bank at Austin • PreemiePalooza in North Carolina • Prone Sleep Increases Preemie SIDS Risk

August 8th Webinar: Multidisciplinary Guidelines for the Care of Late Preterm Infants

Mark your calendar and register now for NPIHC's next webinar, set for August 8 at 2 p.m. EDT. Late preterm infants are often treated as "slightly small, almost term babies," yet babies born at 34 0/7 - 36 6/7 weeks gestation have significantly higher morbidity and mortality rates due to their significant, if not always obvious, immaturity. The "Multidisciplinary Guidelines for the Care of Late Preterm Infants" is an evidence-based approach to providing safe and supportive care for this vulnerable group. Join presenter Raylene Phillips, MD, IBCLC, FAAP, who will review this new resource and describe how its use will lead to improved outcomes for late preterm infants by providing guidance, education, and support for families and the healthcare providers who care for them. The session is appropriate for parents and other advocates, professionals in the field of infant health, and physicians and clinicians providing care to premature infants and their families.

Video Educates About Risks of Elective Preterm Delivery

A new video from the National Child & Maternal Health Program at NIH's National Institute of Child Health & Human Development (NICHD) aims to prevent non-medically indicated preterm induction of labor. The "Is It Worth It?" video, part of an educational initiative to reduce elective deliveries before 39 weeks of pregnancy, features NPIHC friends including blogger-advocate Heather Spohr and the Association of Women's Health, Obstetric and Neonatal Nurses (AWHONN). The initiative's first phase focused on educating healthcare professionals via a CME course for nurses and doctors, sharing the latest research and best practices. Complementing the course, the "Is It Worth It?" video - available in varying formats - discusses maternal and child health risks posed by delivery prior to 39 weeks, barring medical indications. The videos are being shared online and are playing in healthcare providers' offices across the U.S.

Mothers' Milk Bank at Austin

The Mothers' Milk Bank at Austin is a nonprofit organization whose mission is to accept, pasteurize, and dispense donor human milk by physician prescription, primarily to premature and ill infants. Founded in 1998 by two Austin, TX neonatologists, the Mothers' Milk Bank at Austin is the second-largest milk bank in the U.S. and a leading member of the Human Milk Banking Association of North America (HMBANA). Currently the Mothers' Milk Bank at Austin serves 100 hospitals in 21 states, processing 8,000 ounces of milk every week and serving thousands of preterm babies annually.

PreemiePalooza in North Carolina

August 3, 2014 from 5 to 9 p.m., NPIHC member Zoe Rose Memorial Foundation will host its first annual PreemiePalooza at Windy Meadows Farm in Graham, NC. This family festival "celebrating music, food, and preemies" will bring together a lineup of musical guests for an al fresco evening of fun. Your participation helps the Zoe Rose Memorial Foundation's goal of raising $5,000 to support preemie families. For more information, contact Keira Sorrells at keira@zoerose.org.

Prone Sleep Increases Preemie SIDS Risk

A new study published as an abstract in the journal Sleep shares preliminary data suggesting that preterm infants who sleep in the prone position may be at heightened risk for sudden infant death syndrome (SIDS), due to decreased cerebral oxygenation. The Australian research team notes an overall 9.6% increased SIDS risk among preterm infants, possibly associated with cardiovascular instability and failure of arousal from periods of sleep. Preemie infants may also have lower blood pressure, abnormal blood pressure control, higher heart rate, and reduced heart rate control, contributing to SIDS risks. The prone sleeping position, on the stomach, is already known to be associated with reduced blood pressure and cerebral oxygenation in full-term babies, which increases risk for SIDS.

Sources:

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.

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Preemie Matters – June 2013

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In this issue of Preemie Matters: New Members • NPIHC Webinar: Multidisciplinary Guidelines for the Care of Late Preterm Infants • Critical Shortages Affecting NICU Infants • National Association of Neonatal Nurses (NANN) • Preemie Parent Alliance Summit • Breast Milk Use in NICUs Remains Too Low

New Members

Join us in welcoming the Coalition's newest members: National Association of Neonatal Nurses  • National Association of County and City Health Officials • Pennsylvania Premie Network  • The Tiny Miracles Foundation  • Parent Connection  • Texas Parent to Parent  • Mothers' Milk Bank at Austin Learn more about National Premature Infant Health Coalition membership and complete the online application on our website.

NPIHC Webinar: Multidisciplinary Guidelines for the Care of Late Preterm Infants

Mark your calendar and register now for our next webinar, set for August 8 at 2 p.m. EDT. Late preterm infants are often treated as "slightly small, almost term babies," yet babies born at 34 0/7 - 36 6/7 weeks gestation have significantly higher morbidity and mortality rates due to their significant, if not always obvious, immaturity. The "Multidisciplinary Guidelines for the Care of Late Preterm Infants" is an evidence-based approach to providing safe and supportive care for this vulnerable group. Join presenter Raylene Phillips, MD, IBCLC, FAAP, who will review this new resource and describe how its use will lead to improved outcomes for late preterm infants by providing guidance, education, and support for families and the healthcare providers who care for them. The session is appropriate for parents and other advocates, professionals in the field of infant health, and physicians and clinicians providing care to premature infants and their families.

Critical Shortages Affecting NICU Infants

Have you seen our new blog post from Dr. Mitch Goldstein on the nation's drug shortage crisis affecting fragile infants? Recent media coverage has put a spotlight on widespread shortages of critical medications and nutrients affecting hospitalized preemies and other patients. A May 22nd story in the Washingtonian reported "rationing, hoarding, and bartering of critical nutrients" in Washington, DC facilities, and "doctors reporting conditions normally seen only in developing countries." In late March, NBC News reported on the national scarcity of injectable zinc, "in such short supply that at least seven extremely premature infants in the U.S. developed horrifying skin lesions and life-threatening reactions after their hospitals ran out." CDC began its coverage of these shortages in the February 22, 2013 edition of their Morbidity and Mortality Weekly Report (MMWR). And as with this new blog post from Texas Children's Hospital, individual facilities and providers continue to report on how shortages are affecting them, through outlets like social media, making the case that the problem will not "self-correct" and that federal legislation has not yet moved forward to address it. In one possible - though limited and temporary - step forward, USA Today reported that U.S. health regulators are allowing overseas imports of one critical IV drug formula used to nourish preemies. The U.S. Food and Drug Administration (FDA) says new supplies of the drug total parenteral nutrition, are being made available to U.S. patients through this arrangement, as a temporary measure to ease shortages triggered by the shutdown of the drug's primary U.S. manufacturer. Watch our Facebook page and Twitter #NPIHC as we continue to follow these shortages and the measures addressing them.

National Association of Neonatal Nurses (NANN)

NANN, the National Association of Neonatal Nurses, is the longest established professional voice supporting neonatal nurses through excellence in practice, education, research, and professional development. NANN was founded in 1984 in California by five neonatal nurses. NANN celebrated the first Neonatal Nurses Day in 2000, and in 2001 introduced their journal, Advances in Neonatal Care. More recently, in 2011, they launched MyNANN, a private online social network for members, and released the second edition of Policies, Procedures, and Competences for Neonatal Nursing Care. NANN's 29th Annual Educational Conference takes place this fall in Nashville, TN. Connect with NANN and get their latest news on Facebook and Twitter.

Preemie Parent Alliance Summit: October 4-6, 2013

Registration is open for the Third Annual Preemie Parent Alliance Summit, set for October 4-6, 2013 in Nashville, TN. Join preemie parent leaders and professionals for a learning and networking opportunity aimed at working together to support the families of premature infants. Among the event's notable speakers is PTSD expert Michele Rosenthal with a keynote, "Reclaiming Life Beyond the NICU: Redefining Who You Are and How You Live." Learn more about the work of the Preemie Parent Alliance at the PPA website.

Breast Milk Use in NICUs Remains Too Low

A new study published in Pediatrics finds that the use of breast milk in advanced-care NICUs is increasing, but remains too low. Using CDC data, the research team found that only about one-third of NICUs routinely provide human milk, whether from a baby's mother or donated -- suggesting that many medically-fragile babies are not receiving optimal protection from infections and other morbidities. The American Academy of Pediatrics (AAP) recommends that all preterm infants receive human milk. "Hospitals... can further support the care of medically fragile infants by adopting policies and practices to support mothers in being able to provide their breast milk to their infants," the authors write.

Sources:

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB’s disclaimer is available on our website.

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Preterm Birth in Illinois: Understanding the Problem, Forging a Solution

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This report from the Perinatal Advisory Committee of the Illinois Department of Public Health provides findings and recommendations concerning reducing preterm births in Illinois. SUMMARY OF FINDINGS The Problem: Preterm Birth and its Consequences

Preterm birth affects one in eight babies in the Preterm Birth in Illinois ReportUnited States, and 21,168 infants per year in Illinois (National Center for Health Statistics, 2009). Forging solutions to reduce preterm birth rates and improve pregnancy outcomes is one of the most urgent problems in maternal child health today. Infants born prematurely, or before 37 weeks completed gestation, suffer from increased risk of lifelong disabilities, including cognitive and learning problems, cerebral palsy, neurological problems, respiratory problems, and vision and hearing loss. These infants also are at an increased risk for Sudden Unexpected Infant Death (SUID), conditions such as Attention Deficit-Hyperactivity Disorder (ADHD), and recurrent hospitalizations. Preterm birth is the leading cause of infant mortality and newborn death. The significant and persistent racial, ethnic, and socioeconomic disparities in the rate of babies born too soon are deeply concerning. The consequences of an infant born prematurely have considerable emotional and financial impact on families, communities, and public-sector services. According to the Institute of Medicine, the annual societal economic burden associated with preterm birth in the United States was at least $26.2 billion in 2005, or $51,600 per infant born preterm.

 

 

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NPA's Multidisciplinary Guidelines for the Care of Late Preterm Infants

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In response to increasing awareness of the very real risks for late preterm infants, the National Perinatal Association has worked in collaboration with many partners across the spectrum of care, to create multidisciplinary guidelines that provide evidence-based recommendations for the care of late preterm infants.

These guidelines give healthcare providers and others a road map that focuses attention on the unique needs of late preterm infants from birth through early childhood, helping to ensure potential health risks aren't overlooked.

NPA Multidisciplinary Guidelines

 

 

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Preemie Matters – April 2013

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In this issue of Preemie Matters: New Members • NPIHC Virtual Summit • Assessment & Care of the Late Preterm Infant Implementation Toolkit • Jewish Family & Children's Service - Center for Early Relationship Support • FAST FACTS from HMHB: What You Should Know About Short Cervix & Preterm Birth • USLCA Conference to Feature Preemie Sessions

New Members

Join us in welcoming the Coalition's newest members:

Learn more about National Premature Infant Health Coalition membership and complete the online application on our website.

Join Us! NPIHC Virtual Summit

There is no cost to participate in any of the 2013 Summit events, and all are open to parents, providers, policymakers, and anyone with an interest in issues of prematurity.

Join us for the 2013 NPIHC Networking Reception and mark your calendar to participate in the following educational sessions online:

  • "How Providers Can Empower Parents" with Sue Hall, M.D., Stormont-Vail HealthCare; Keira Sorrells, Preemie Parent Alliance; and Laura Martin, Graham's Foundation. Wednesday, May 8 at 11:00 a.m. Eastern. To participate, join the conversation on the NPIHC Facebook page.
  • "Collaborating with Legislators to Advocate for Prematurity" with Janine Lewis, Illinois Maternal & Child Health Coalition and Representative Robyn Gabel (D), Illinois - 18th District. Thursday, May 9 at 3:00 p.m. Eastern. Register here!
  • "Enhancing Safety and Outcomes with Evidence-Based Practices" with Dr. Alan Spitzer, Pediatrix. Friday, May 10 at 11:00 a.m. Eastern. Register here!

Also join the NPIHC team in the Washington, DC March for Babies on Saturday, May 4 at 9:00 a.m. For more information about Summit activities, visit our website and follow us on Facebook.

Assessment & Care of the Late Preterm Infant Implementation Toolkit

A new online resource from the Association of Women's Health, Obstetric and Neonatal Nurses (AWHONN), the Assessment and Care of the Late Preterm Infant Implementation Toolkit, aims to improve patient outcomes and reduce risks associated with being born at late preterm and early term, while also saving time and reducing costs. The toolkit provides ready-to-use, customizable tools and strategies for assessing risks, providing appropriate evidence-based care, and tracking outcomes for late preterm and early term infants in healthcare facilities and healthcare systems. It's is designed to support and build on the information presented in AWHONN's Assessment and Care of the Late Preterm Infant Evidence-based Clinical Practice Guideline.

Jewish Family & Children's Service - Center for Early Relationship Support

The Jewish Family and Children's Service - Center for Early Relationship Support serves Greater Boston, MA with direct services, training, supervision, and consultation that focus on the earliest infant-parent relationship. Through hospital and home visits and a monthly support group, the Center's Fragile Beginnings program supports parents of preterm infants, helping to bridge the transition from hospital to home and to support the special challenges of preemie parenting. In addition, the Fragile Beginnings Preemie Parent Alliance, a parent/professional partnership serving New England, helps families and providers access resources in their communities, stay updated on preemie policy issues, and connect around their stories and perspectives. Among the Center's other important programs are Early Connections, a therapeutic service for new parents experiencing emotional difficulties; a feeding support program; an Infant-Parent Training Institute; support for young parents under age 21; and the Visiting Moms program for pregnant women and new mothers.

FAST FACTS from HMHB: What You Should Know About Short Cervix & Preterm Birth

A new resource for maternal-child health paraprofessionals and women who are pregnant or planning a pregnancy educates about cervical length, its relationship to premature labor and birth, and implications for the prenatal care of women with at-risk medical histories. The National Healthy Mothers, Healthy Babies Coalition's Fast Facts: What You Should Know About Short Cervix & Preterm Birth is available on the HMHB website for online viewing and easy download in PDF format. It is an educational companion piece to HMHB's recent guest blog on this issue from Betty Jordan, DNSc, RNC at the Johns Hopkins School of Nursing.

USLCA Conference to Feature Preemie Sessions

The United States Lactation Consultant Association's (USLCA) first National Conference, set for May 3-5, 2013 in St. Louis, Missouri, will feature four sessions specific to breastfeeding concerns for preterm infants and their mothers. Sessions include "Premature Babies: Strategies to Increase Intake of Human Milk," "Breastfeeding the Late Preterm Infant," "Creating a Culture of Breastfeeding in the NICU," and "Steps to Success in Breastfeeding the Preterm Infant." The USLCA conference draws an audience of practicing lactation consultants, those in training, perinatal healthcare providers, and breastfeeding advocates. Learn more and register at the USLCA website.

Sources:

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB’s disclaimer is available on our website.

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Preemie Matters – March 2013

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In this issue of Preemie Matters: NICU Resource Library • Parents of Preemies Day 2013 • Strong Start for Mothers & Newborns • Skyler's Gift Foundation • Integrating "Back to Sleep" Recommendations Into NICU Practice 

NICU Resource Library

Nonprofit preemie parent support organization Hand to Hold has launched an online NICU Resource Library for hospitals, offering educational info and support to families who have a baby in the neonatal ICU. The library- which includes resources in both English and Spanish for co-branding by hospitals and print-on-demand- is available to NICUs for an annual membership fee. This resource to support family-centered care may also be gifted by individuals or corporations through Hand to Hold's "For the Love of Babies" campaign.

Parents of Preemies Day 2013

March 10th marked the second annual Parents of Preemies Day, and event coordinators report a strong turnout and exciting growth across the U.S. as well as internationally. This year, more than 400 adults and 300 children attended events in six cities, and many more parents and supporters were present at 10 NICU-only events - including the first ever Parents of Preemies Day event in Indonesia. Online, thousands of preemie parents shared their stories and photos on the Parents of Preemies Day Facebook page, and #ParentsofPreemiesDay was a trending topic during an official Twitter chat. The National Premature Infant Health Coalition supported Parents of Preemies Day through social media and with a blog post in collaboration with the National Healthy Mothers, Healthy Babies Coalition (HMHB). Planning for 2014 is already underway at Graham's Foundation, which produces this annual observance.

Strong Start for Mothers & Newborns

In February, the U.S. Department of Health and Human Services (HHS) unveiled a new initiative, Strong Start for Mothers and Newborns, aimed at lowering prematurity rates under Medicaid and CHIP. Through grant funding, communities with high rates of preterm births will receive support for improving prenatal care. Awards are expected to serve 80,000 women in 32 states, the District of Columbia, and Puerto Rico.

Skyler's Gift Foundation

Following the birth of their twin sons Stephen and Skyler at 24 weeks, and the subsequent loss of Skyler in the neonatal ICU, preemie parents Tiffany and Stephen Bowen started Skyler's Gift Foundation in 2012 with the belief that no one should have to face this kind of loss alone, without needed resources. Along with funding prevention research and education, Skyler's Gift Foundation supports families in need of financial assistance for mortuary and burial costs, as well as grief counseling and support groups for moms, dads, and siblings. On the evening of May 4th in Washington, DC, the Foundation will host its first major fundraiser, a Bowl-a-Thon at Lucky Strike featuring Stephen Bowen and other NFL players, including several of Stephen's teammates from the Washington Redskins. Get complete details and buy tickets on the Skyler's Gift website.

Integrating "Back to Sleep" Recommendations Into NICU Practice

The American Academy of Pediatrics (AAP) recommends that NICUs endorse and model safe sleep, SIDS risk-reduction practices with parents before a baby's discharge. New research published in the journal Pediatrics finds that a program which includes detailing when to start safe start sleep practices, a "Back to Sleep" crib card, educational programs for nurses and parents, a crib audit tool, and post-discharge telephone reminders may lead to significantly improved outcomes. After implementation of the study's program, NICU "back to sleep" compliance increased from 39% to 83%, and parental compliance with safe sleep practices at home increased from 23% to 82%.

Sources:

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB’s disclaimer is available on our website.

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Preemie Matters – February 2013

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In this issue of Preemie Matters: Share Your Latest News with NPIHC • New Insights Into Preemie Brain Injury, New Avenues for Treatment • Multidisciplinary Guidelines for the Care of Late Preterm Infants • PREEMIE Reauthorization Act Introduced in U.S. Senate • Mothers & Babies Perinatal Network of South Central New York • NPIHC Video in the Making

Share Your Latest News with NPIHC

Friends and colleagues in the prematurity field: Do you have new resources, upcoming events, or other news to share? We want to hear from you! Please send your announcement our way and we can help spread the word via Preemie Matters, the NPIHC website, and the NPIHC Facebook page. For consideration, send email to agoodman@hmhb.org.

New Insights Into Preemie Brain Injury, New Avenues for Treatment

A discovery about brain injury among preemies may open avenues for potential therapies. A study published online in a January issue of the journal Science Translational Medicine finds that low blood and oxygen flow to the developing brain does not--as previously believed--cause an irreversible loss of brain cells. Instead, new findings suggest it disrupts the cells' ability to fully mature. Researchers say the discovery means new possibilities for therapies that would promote regeneration and repair of the premature infant's brain. According to Stephen Back, M.D., Ph.D., lead researcher and professor of pediatrics and neurology in the Pap-Family Pediatric Research Institute, OHSU Doernbecher Children's Hospital, "We can focus greater attention on developing the right interventions, at the right time early in development, to promote neurons to more fully mature and reduce the often serious impact of preterm birth. We now have a much more hopeful scenario."

Multidisciplinary Guidelines for the Care of Late Preterm Infants

The National Perinatal Association recently launched the Multidisciplinary Guidelines for the Care of Late Preterm Infants, a new tool for healthcare providers, parents, case managers, and others involved in the care of babies born between 34-36 6/7 weeks gestation. The guidelines--developed in collaboration with more than 20 healthcare professionals and organizations--provide evidence-based recommendations that focus on the management of late preterm infants from birth through childhood and can be used as a road map that provides guidance for the healthcare team and for families. The guidelines are available free of charge, in an easy-to-navigate PDF format, on the National Perinatal Association website.

PREEMIE Reauthorization Act Introduced in U.S. Senate

On February 7th the PREEMIE Reauthorization Act--bipartisan legislation intended to lower the nation's preterm birth rate--was introduced in the U.S. Senate. Similar legislation was introduced on February 6th in the U.S. House of Representatives. Senators Lamar Alexander (R-TN) and Michael Bennet (D-CO) and Representatives Anna Eshoo (D-CA) and Leonard Lance (R-NJ) introduced the bill, which would advance federal research and promote known interventions and community initiatives to reduce preterm birth and infant mortality caused by prematurity. This newly-introduced legislation is nearly identical to the bills that passed both the House and Senate during the 112th Congress. Congress adjourned before the Senate could reconsider its version with House amendments. The original PREEMIE Act (P.L. 109-450) brought the first-ever national focus to prematurity prevention, and the Surgeon General's Conference on the Prevention of Preterm Birth required by the Act generated a public-private agenda to spur innovative research at NIH and CDC.

Mothers & Babies Perinatal Network of South Central New York

Mothers & Babies Perinatal Network of South Central New York (M&BPN) works to improve pregnancy and birth outcomes in a region encompassing seven counties. As one of 16 New York State Perinatal Networks originally developed with funding from the New York State Department of Health, M&BPN strives to make positive change in health outcomes for women, infants, and families. They provide free or low-cost services for families, regional planning for maternal and child health programs, and education and referral services for individuals and families. They also partner with aligned organizations at the local, regional, and state level and promote policies, programs, and services for parenting families and teens. Additionally, M&BPN offers educational programming on child, family, and teen topics for the community, as well as professional education programs for health and human services. Visit the M&BPN website to learn more about their work.

NPIHC Video in the Making

We are in the final stages of production for a new video spotlighting the important work of the National Premature Infant Health Coalition. In support of the project, we issued an open call for photographs on NPIHC's Facebook page, inviting preemie parents to share snapshots of their children and families, documenting their journeys. We were so moved by the overwhelmingly generous response, and look forward to incorporating as many of these images as possible into the final video. Just another example of how social media is creating new opportunities for connecting, communicating, educating, and advocating in the field of prematurity and maternal and child health. Stay tuned for the video release!

Sources:

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.

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Preemie Matters – January 2013

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In this issue of Preemie Matters: NPIHC's Membership • Reducing Preterm Birth's in Illinois • AAP Updates Screening Guide for Retinopathy of Prematurity • Knowledge Path on Perinatal Maternal Stress & Child Outcomes • HMHB & HER Foundation Blog About HG • Graham's Foundation

NPIHC Membership

NPIHC recently updated the vision, mission and goals of the Coalition and we're looking forward to expanding membership in the New Year. If you work in the field of prematurity or know someone who does, consider filling out a membership application and become involved in this unique coalition of professionals, clinicians, community health members, and families working toward improving the lives or premature infants and their families. NPIHC membership is open to any nonprofit organization, agency, or institution which has a stake or professional interest in the issues surrounding prematurity. There is no fee for membership. Other potential members are considered on a case-by-case basis, subject to approval by the NPIHC steering committee. For those who don't meet membership criteria but would like to get involved, we encourage you to become a "Friend" of the Coalition in a less formal capacity. To learn more, contact us at NPIHC@hmhb.org.

Reducing Preterm Births in Illinois

With a renewed national focus on prematurity by public health organizations, and the severe global toll of preterm birth, in 2010 the Illinois General Assembly passed House Joint Resolution 111. The resolution stipulated that the Perinatal Advisory Committee of the Illinois Department of Public Health submit a written report by November 2012 providing findings and recommendations on the reduction of preterm births in Illinois. The report, "Preterm Birth in Illinois: Understanding the Problem, Forging a Solution," raises awareness among policymakers, advocacy groups, providers, and the public about this serious problem -- and recommends proven strategies to move Illinois towards the reduction of premature births. The report provided legislators with an overview of the extent and costs of preterm births, outlined known medical and social risk factors of preterm birth, and provided recommendations for evidence-based medical and public health strategies, as well as state system and policy changes, to reduce preterm births. On the NPIHC website, learn more about the Perinatal Advisory Committee's seven recommendations and access slides from a related webinar.

AAP Updates Screening Guide for Retinopathy of Prematurity

In an update to its screening guide, a new American Academy of Pediatrics policy statement says carefully timed retinal exams should be conducted by a knowledgeable and experienced ophthalmologist on preterm babies at risk for retinopathy of prematurity (ROP). The policy statement, published December 31 in the journal Pediatrics, revises a 2006 statement on screening preterm infants for ROP. The new statement discusses characteristics of an effective program for detecting and treating ROP, including the timing of initial exams and intervals for subsequent re-examination.

Knowledge Path on Perinatal Maternal Stress & Child Outcomes

Maternal stress during and after pregnancy is associated with premature births; low-birthweight infants; infant mortality; and challenges in health, development, and learning in infancy and early childhood. A new tool from the Maternal and Child Health Library at Georgetown Library, "Maternal Distress in the Perinatal Period and Child Outcomes Knowledge Path," compiles current knowledge and resources on maternal stress during and after pregnancy. The knowledge path is a helpful tool for health professionals, program administrators, policymakers, and researchers to learn more about maternal stress and child outcomes, to integrate what they know into their work to improve care, for program development, to locate training resources, and to answer specific questions. A separate brief lists resources for families.

HMHB & HER Foundation Blog About HG

The National Healthy Mothers, Healthy Babies Coalition (HMHB) kicked off the New Year with a new blog post on a timely topic. "Understanding Hyperemesis Gravidarim (HG)," co-authored by Ann Marie King of the HER Foundation and UCLA genetics researcher Dr. Marlena Fejzo, educates about this serious but little-known pregnancy complication which increases risk for preterm birth, small for gestational age, and low birth weight. A condition long underfunded and little understood, HG's public profile has recently been raised by media coverage of Kate Middleton's pregnancy. Britain's Duchess of Cambridge suffers from hypermesis gravidarum and was hospitalized for treatment in late 2012. Many moms and families who have experienced HG are responding to the blog post by sharing their stories and their perspectives, via blog comments and via Facebook and Twitter. We invite you to read and share the blog post, and join the conversation!

Graham's Foundation

Graham's Foundation, a nonprofit organization founded in 2009 by Jennifer and Nick Hall in memory of their son Graham, offers practical and emotional support to parents of premature babies. The foundation supports parents with care packages for NICU, transition home, and remembrance, as well as through a vibrant online community and social media presence, providing a place for parents to share their stories and find support.

Sources:

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.

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Preemie Matters – December 2012

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In this issue of Preemie Matters: NPIHC's November Webinar • Perspectives from Preemie Mom • AWHONN's "Go the Full 40" Campaign • Social Networking on World Prematurity Day • Keep 'Em Cookin'

NPIHC's November Webinar

Missed our November 15th webinar on the Oklahoma Infant Alliance's Late Preterm Infant Toolkit? It is now archived online, so be sure to check out this learning opportunity and share with colleagues. The toolkit is a key resource for physicians, allied health professionals, and families. It was developed in response to Oklahoma's 13.8% rate of preterm deliveries, with over three-fourths of those being late preterm according to the most recent data. The Oklahoma Infant Alliance sought to meet the needs of this vulnerable population through the development of a toolkit for use in hospitals and agencies working with late preterm infants. The webinar provided an overview of the problem, the process of developing a clinical practice guideline based on current evidence-based resources and research, and final content of the Late Preterm Toolkit.

Perspectives from Preemie Mom & NPIHC Steering Committee Member Deb Discenza

A new post on the National Premature Infant Health Coalition blog features perspective and words of encouragement from a preemie mom and NPIHC steering committee member. Deb Discenza, author of The Preemie Parent's Survival Guide to the NICU (available through PreemieWorld.com) and moderator of the Preemie Support Forum at Inspire.com, is the mother of a now school-age daughter born at 30 weeks. Deb's unique vantage point on the challenges faced as preemie babies grow up has informed her education and advocacy work, supporting the families of children born too soon and too small. We thank Deb for her contribution!

Sign & Share the Pledge: AWHONN's "Go the Full 40" Campaign

The Association of Women's Health, Obstetric and Neonatal Nurses (AWHONN) is promoting its "Don't Rush Me... Go the Full 40" campaign with a national pledge drive, encouraging pregnant women who are healthy and well to wait for spontaneous labor. In addition to targeting expectant moms, AWHONN also encourages healthcare providers and friends and family of pregnant women to sign the pledge, with a goal of more than 50,000 signatures. To join this effort, sign the pledge directly or visit the AWHONN Facebook page. After lending your signature, you'll be invited to share it with up to 50 of your friends and colleagues.

Social Networking on World Prematurity Day

On November 17th the second World Prematurity Day brought together hundreds of associations, professionals, and private sector organizations, as well as thousands of individuals. They participated in national events and shared personal stories through a global campaign raising awareness of preterm birth. The World Prematurity Day page on Facebook engaged more than 50,000 new individuals and shared personal stories from 83 countries. The discussion on Twitter reached nearly 30 million advocates through a 12-hour, multi-partner #WorldPrematurityDay Twitter Relay.

Keep 'Em Cookin'

Guided by the mission of preventing preterm birth, Keep 'Em Cookin' is an online educational community and support group for pregnant women on bed rest and all expectant moms experiencing high-risk pregnancies. Named Pregnancy magazine's "Website We Can't Live Without," Keep 'Em Cookin meets a significant need for the nearly one in five women who will be put on bed rest due to pregnancy complications that could cause premature birth, providing information and support to make the journey easier.

Future Needs & Challenges for "Extreme Preemies"

Two studies published in the British Medical Journal and presented at a briefing in London earlier this month suggest that the number of children and adults with disabilities caused by premature birth will rise in coming years, likely increasing demand for health, educational and social services. The first study examines short-term outcomes for babies born extremely preterm, and the second looks at later developmental and neurological outcomes. The researchers suggest that as the number of extremely preterm babies who survive and are able to go home from the hospital continues to rise, individuals, families, and communities will face new challenges and will need support networks. As noted by these teams, rates of premature birth are rising across many European countries, with particularly high rates in Great Britain and the United States.

Sources:

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.

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Webinar: Oklahoma Infant Alliance's Late Preterm Infant Toolkit

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This webinar is presented by Mike McCoy on The Oklahoma Infant Alliance Late Preterm Infant Toolkit. Oklahoma has an unacceptable rate of preterm deliveries at 13.8%, with over three-fourths of those born late preterm (10%) by the last data from the March of Dimes. The Oklahoma Infant Alliance sought to meet the needs of this vulnerable population through the development of a toolkit for use in hospitals and agencies who work with the late preterm infant. This webinar describes the identified problem, the process of development of a clinical practice guideline based on current evidence-based resources and research, and final content of the Late Preterm Toolkit for physicians, allied health, and families with a goal of reduction of morbidities associated with late preterm birth.  Other Panelists include Denise Cole, Coordinator- Office of Perinatal Quality Improvement, Bunny Hudson, Program Director- Oklahoma Infant Transition Program, Bonnie Bellah, Executive Director - Oklahoma Infant Alliance, and Raja Nandyal, Chair- Oklahoma Infant Alliance.

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Preemie Matters – November 2012

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In this issue of Preemie Matters: Oklahoma Infant Alliance's Late Preterm Infant Toolkit • Prematurity Awareness Month • Minnesota Prematurity Coalition & the Discharge Planning Checklist for Late Premature Infants • World Prematurity Day on Facebook • Improving Breast Milk Feeding Rates for Preemies in California NICUs 

NPIHC Webinar: Oklahoma Infant Alliance's Late Preterm Infant Toolkit

Join the National Premature Infant Health Coalition TOMORROW, Thursday, November 15th at 2 p.m. Eastern Time, for a webinar on the Oklahoma Infant Alliance Late Preterm Infant Toolkit. Oklahoma has an unacceptable rate of preterm deliveries at 13.8%, with over three-fourths of those born late preterm (10%) by the last data from the March of Dimes. The Oklahoma Infant Alliance sought to meet the needs of this vulnerable population through the development of a toolkit for use in hospitals and agencies who work with the late preterm infant. This webinar will describe the identified problem, the process of development of a clinical practice guideline based on current evidence-based resources and research, and final content of the Late Preterm Toolkit for physicians, allied health, and families with a goal of reduction of morbidities associated with late preterm birth. Register today!

Prematurity Awareness Month

November is Prematurity Awareness Month, focusing the nation's attention on preterm birth. On November 13, March of Dimes released its 2012 Premature Birth Report Card, revealing that while the U.S. preterm birth rate continues to decline, we still earn an overall grade of "C" and face significant need for improvement. This month March of Dimes also leads a petition to "Light the White House Purple" as a symbol of hope to preemie families, and they are bringing together advocates asking Congress for passage of the PREEMIE Reauthorization Act. On November 17, World Prematurity Day, March of Dimes and partner organizations worldwide are asking everyone to help spread the word about the serious problem of preterm birth. Be sure to let us know what YOU or your organization did to mark this important health observance!

Minnesota Prematurity Coalition & the Discharge Planning Checklist for Late Premature Infants

The Minnesota Prematurity Coalition's mission is reducing premature births in the state and advocating for infants who are born prematurely and their families. Founded in 2009, they have actively worked with community partners and organizations to bring awareness to this very important issue. In 2011, the Minnesota Legislature passed a statute creating the Minnesota Task Force on Prematurity. Members of the Prematurity Coalition as well as members of the Legislature, Department of Health and Department of Education all serve on the Task Force.

After surveying hospitals throughout the state, the Task Force discovered a great need for information on the treatment and discharge requirements of the late preterm infant. In September 2012, the finalized Discharge Planning Checklist for Late Premature Infants was distributed.

The Task Force is currently working on a final report to the Minnesota Legislature, due in January 2013, which will include evidence-based recommendations to reduce prematurity in Minnesota - including any draft legislation necessary for implementation. Find information including meeting dates, action items and resources at the website, or contact Coalition Manager Bonnie Hansen at 320-290-4909 or MPO@clearwire.net.

World Prematurity Day on Facebook

This year the observance of World Prematurity Day has a significant social media component, bringing together partners, supporters and families from around the globe in a collaborative digital space. Check out the World Prematurity Day page on Facebook, where you can read stories from around the world and share your own, watching the virtual world map light up when new stories are added to the communal narrative. Join the effort by updating your own Facebook status to help others understand the problem, changing your Facebook cover image, or grabbing a badge for your blog or website.

Improving Breast Milk Feeding Rates for Preemies in California NICUs

A new study published in the journal Pediatrics examines how California hospitals improved breast milk feeding rates for very low-birthweight preemies. Eleven NICUs in the California Perinatal Quality of Care Collaborative participated in an Institute for Healthcare Improvement-style collaborative to increase NICU breast milk feeding rates. Over the 12-month study and subsequent six-month follow-up period, the 11 participating hospitals increased their rates of breast milk feeding for NICU babies at discharge from 55 percent to 64 percent, bringing these hospitals up to the average rates for the state. Participating hospitals also reduced the rate of a serious complication of prematurity - the bowel disease known as necrotizing enterocolitis - by two-thirds, from seven percent to about two percent of all infants in their NICUs. Among the important changes hospitals made: Increasing babies' skin-to-skin time with their mothers and improving the education of NICU staff about breast milk feeding.

Sources:

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.

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Resources for Prematurity Awareness Month

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November is Prematurity Awareness Month!

Check out activities from the March of Dimes to see all of the ways you can get involved throughout the month. Keep us up-to-date on how you are helping to promote preemie awareness so we can share your efforts with others!

Don't forget that November 17th is also World Prematurity Day!

Click here for great ways to get involved and stay informed from the March of Dimes.

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Preemie Matters – October 2012

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In this issue of Preemie Matters • NPIHC November Webinar • Low-Income Preemies • Pregnancy & Infant Loss Awareness Day • Papas of Preemies • Celine Dion PSA • Prematurity Awareness Month • NPIHC Membership.

NPIHC Webinar: Oklahoma Infant Alliance's Late Preterm Infant Toolkit

Join the National Premature Infant Health Coalition on Thursday, November 15th at 2 p.m. ET for a webinar on the Oklahoma Infant Alliance Late Preterm Infant Toolkit. Oklahoma has an unacceptable rate of preterm deliveries at 13.8%, with over three-fourths of those born late preterm (10%) by the last data from the March of Dimes. The Oklahoma Infant Alliance sought to meet the needs of this vulnerable population through the development of a toolkit for use in hospitals and agencies who work with the late preterm infant. This webinar will describe the identified problem, the process of development of a clinical practice guideline based on current evidence-based resources and research, and final content of the Late Preterm Toolkit for physicians, allied health, and families with a goal of reduction of morbidities associated with late preterm birth. Register today!

Heightened Risks for Low-Income Preemies

New research from Johns Hopkins Children's Center finds that preterm babies of low-income parents are at high risk for developing dangerous brain bleeds that require multiple surgeries and extensive follow-up treatment. Published in Pediatric Neurosurgery, the small study also found that preemies from lower-income families and those with public health insurance had fewer scheduled follow-up appointments and more emergency room visits, compared to preemies with private health insurance and those from higher-income homes. The team says their findings need to be replicated on a wider scale to learn more about the reasons behind these disparities, but note that their findings represent a "sobering reminder of the role socio-economic factors can play in health outcomes."

Commemorating Pregnancy & Infant Loss Awareness Day

To mark October 15th as Pregnancy and Infant Loss Awareness Day, the National Premature Infant Health Coalition used social media to promote resources for both families and professionals from partners including the National SUID/SIDS Resource Center and First Candle. On NPIHC's Facebook page, we also created a special post marking the observance and inviting families to share their stories, honor and remember. Many did, and 74 friends and colleagues shared the post through their own social media channels. We encourage families to continue to contribute their stories and remembrances to this online tribute.

Partner Profile: Papas of Preemies

Online support community Papas of Preemies gives fathers a voice in the world of prematurity and takes a dad's perspective in navigating the journey through the neonatal ICU and beyond. Founded by a preemie dad, the Papas of Preemies community - networked through a website and blog, Facebook page and Twitter handle - offers fathers a safe and welcoming space in which to share their stories and connect with others who have been through similar experiences. Their message: You are not alone.

Celine Dion PSA Brings Global Attention to Prematurity

A new TV PSA featuring Celine Dion calls on families to use social media to connect with each other and to ask governments for action preventing premature births. Produced in English and French versions, the PSA is part of a global campaign from partners March of Dimes, Partnership for Maternal Newborn and Child Health, Save the Children, and the World Health Organization (WHO). "I share the fears and concerns of all parents knowing that more than one million babies around the world die every year because they didn't get enough time to grow," Dion says in the PSA, directing viewers to a World Prematurity Day Facebook page where they can write about and post a picture of their child, family member, or friend whose child was born too soon. A world map lights up each individual's posting and allows them to connect with and support others around the globe.

Gearing Up for Prematurity Awareness Month

November is Prematurity Awareness Month, when sponsor March of Dimes focuses the nation's attention on premature birth. The awareness month kicks off November 1 with the release of the 2012 Premature Birth Report Card, followed by World Prematurity Day on November 17, when partner organizations worldwide raise awareness about preterm birth as a serious public health problem. Let us know how you are taking part in this year's prematurity health observance!

Join Us! Become a Member of the National Premature Infant Health Coalition

Are you interested in becoming a National Premature Infant Health Coalition member? Members work collaboratively with the Coalition to disseminate information and news, promote events, and reach the broad NPIHC professional and parent network. If you are a nonprofit organization or entity, you're eligible to complete the application for membership. All friends of the Coalition are invited to check out our resources and connect with us, but those eligible for membership are encouraged to take the extra step of completing the application and making membership official.

Sources:

Information is reported as provided and does not necessarily represent the view of the National Healthy Mothers, Healthy Babies Coalition. A complete copy of HMHB's disclaimer is available on our website.